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Caregiver Self-Care: Capacity, Safety, and the Reality We Live In

Updated: 3 days ago


Why self-care advice often fails caregivers



An adult man using a wheelchair walks along a forest path with his sister, representing integrated caregiving and steady daily life.


Self-care advice is usually built for people who can step away.


Time. Flexibility. Money. Coverage.


For many caregivers, that isn’t possible.


When you are responsible for someone who needs care around the clock, someone who cannot be left alone, self-care is not about escape, improvement, or adding something extra to your life.


It’s about capacity.


About staying physically, mentally, and emotionally steady enough to meet a life that carries real responsibility without collapsing under it.


Much of the advice offered to caregivers assumes a life with options that simply aren’t available.




The Advice Problem No One Names



Caregivers are routinely told to take time away, attend support groups, take a class, develop hobbies, prioritize relationships, or schedule respite care.


The assumption underneath all of this is that there is flexible time, available coverage, and enough financial margin to make those choices possible.


For many caregivers especially those caring for family members at home there isn’t.


Many are paid through state Medicaid programs to provide care that would otherwise require far more expensive institutional placement. This saves the state a significant amount of money. Yet caregivers are often paid less than fast-food wages.


The math matters.


Caregivers cannot afford to hire another caregiver for respite without giving up their own paid hours only to pay someone else significantly more. The system is structured in a way that makes “taking time off” financially impossible.


This isn’t a failure of creativity or effort.

It’s a structural constraint.


What often goes unrecognized is that many caregivers did not enter this role because of limited skill or opportunity. Many are educated, professionally trained, and had established careers before caregiving became their primary work.


Stepping into full-time caregiving often means willingly relinquishing income, professional advancement, and a previous standard of living in order to take responsibility for another person’s safety, health, and daily life. The pay structure does not reflect the level of skill, accountability, or consequence involved despite the fact that caregivers are routinely responsible for decisions that directly affect someone’s well-being and survival.


What also goes unacknowledged is the cognitive and emotional load caregivers carry.


Caregiving is not only physical labor. It is constant tracking medications, schedules, safety risks, medical history, emotional regulation, anticipation of needs. Even rest happens with one ear open.


Many caregivers are not exhausted because they lack resilience.

They are exhausted because there is no true off-switch.



Self-Care as Capacity, Not Escape



In this reality, self-care has to be integrated, practical, and sustainable.


It has to work inside a life, not require stepping outside of it.


That reframes everything.


Self-care becomes about reducing risk, maintaining strength, regulating the nervous system, protecting steadiness, and preserving enough capacity to keep going.


Not about escape.

Not about optimization.

Not about becoming a better version of yourself.


Just about staying well enough to do what must be done.


Caregiving also involves ongoing moral decision-making. Choices are rarely clean or satisfying. They are tradeoffs: safety versus independence, finances versus support, emotional well-being versus physical risk.


Living inside these decisions day after day takes a toll that self-care advice rarely acknowledges.


This is not about fixing caregivers.

It is about acknowledging the conditions they are responding to.



Physical Strength as Safety



For caregivers providing hands-on care, physical strength is not a lifestyle choice. It is a safety issue.


The ability to lift, stabilize, respond, and protect both bodies matters. Injury, illness, or depletion increases risk for everyone involved.


That doesn’t eliminate risk. Caregiving always carries it.

But staying physically capable helps reduce it.


Strength, in this context, is functional - core, legs, arms, balance, posture, awareness.


Nothing extreme. Nothing performative.

Just enough to meet the physical demands of the day with steadiness rather than strain.


A quiet wooded path with a small bridge, symbolizing functional strength and steady movement in daily caregiving life.



When Physical Care Supports Mental and Emotional Health



Physical self-care only works when it supports mental and emotional well-being, not when it adds pressure.


For many caregivers, highly structured or high-intensity routines create more stress, not less. When movement becomes another obligation or benchmark, it stops serving its purpose.


Simple, integrated movement often works better: walking, stretching, gentle strength work, breath awareness.


Movement that calms the nervous system rather than activates it.

Movement that fits into the day instead of competing with it.


The goal isn’t achievement.

It’s regulation.




Nervous Systems Under Long-Term Responsibility



Many caregivers are living with nervous systems responding appropriately to long-term responsibility, vigilance, and uncertainty.


Long-term caregiving places sustained demands on the nervous system , constant awareness, responsibility, unpredictability, and often trauma. These responses are not signs of weakness or poor regulation; they are the nervous system doing exactly what it was designed to do in prolonged responsibility.


For many caregivers, stress is not episodic. It is ongoing.


This life often includes grief that does not resolve neatly, losses without clear endings, and identities that narrow even as responsibility expands.


Self-care in this context cannot be about transformation or escape.

It has to be about steadiness, about staying human inside a role that can easily consume everything.



Birds flying over calm ocean water, symbolizing spaciousness and nervous system regulation.



Protecting the Morning



One practical way many caregivers preserve steadiness is by protecting a small window of grounding before the day begins.


Not rigid routines.

Not perfection.


Just enough quiet to arrive in the day rather than react to it.


This might look like coffee, prayer, reading, a short walk, or silence, adapted as needed across seasons and circumstances.


Small anchors matter.



Rest, Nourishment, and Letting Go of Perfection



Rest matters. Sleep matters. Food matters.


Not perfectly.

Not rigidly.


Caregiver self-care has to allow flexibility, grace, and imperfection. Guilt and self-surveillance only add strain to an already full system.


Consistency, not optimization is what sustains.


So does community, especially with people who understand this life from the inside.




Strength That Listens



Caregiver self-care isn’t about doing everything right.


It’s about paying attention.

Listening instead of overriding.

Choosing what sustains rather than what impresses.


Strength, in this life, often looks quiet.

It looks like adjustment.

It looks like staying.


Geese resting on still water, reflecting quiet strength, steadiness, and attentive presence.


A Quiet Invitation



If this resonates, you’re not alone.


I write about caregiving, resilience, and steadiness in lives that carry real responsibility, honestly and without pretense. You’re welcome to subscribe if you’d like to receive future posts.



2 Comments


LorriAnn
2 hours ago

Yes!!!!! Thank you for writing the unique yet shared unseen and profound. Your photos are superb as well. xoxo

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Marsha Dienelt
2 days ago

I wish I’d had this while I spent 5 y caregiving my husband w/ Alzheimer’s. After he passed I spent the next yr in/out hospitals/SNF’s/respite care/ post acute rehab. Nobody “ got it.” How can I get written copies of this & other things you write? How to refer others? THANK & BLESS YOU!!!

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